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Thank You to All
Our Monetary,
In-Kind, Program and Event Sponsors
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L
Lynn Roberts International
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Issue: # 2011-2
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Summer 2011
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Board Member Profile of the Month
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David
Frydman
and Family Bio
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My name is David
Frydman
and this has been my
second year on the Board of Directors of DSOSN. I am originally
from New Hempstead, NY but I have been living in Las Vegas since 1996.
I am currently an Elementary School Principal at Helen M.
Jydstrup
Elementary School. My wife Lauren is
an Elementary School Counselor at Kay Carl Elementary School.
In December 2008, 6 weeks
prior to her due date, my wife gave birth to 2 beautiful boys; Ari and
Noah. When you give birth to twins, things happen very quickly in
the operating room. Lauren had an unplanned Cesarean Section
because Ari was breached. Ari came out first and 4 nurses
attended to him very quickly. I was being congratulated by many
people I didn't know. One minute later, Noah came out and he was
attended to just as quickly. However, the nurses and the doctors seemed
a little bit more concerned with Noah. They were checking his
hands and feet and whispering to one another. When I asked if
everything was okay I was told that the doctor would talk to me.
A while later, while Lauren and I were still processing
everything that happened during the day, a doctor came in and very
"matter of
factly
" let us know that
he suspected that Noah was with Down Syndrome. He acted as if
this was a death sentence and let us
know
what
being with Down Syndrome would mean for Noah medically. He told
us that there would be a good chance Noah would have congenital heart
defects, low muscle tone, hearing and vision problems, thyroid
problems, intestinal abnormalities, seizure disorders, respiratory
problems, obesity, an increased susceptibility to infection, and a
higher risk of childhood leukemia. What he neglected to tell us
is how amazing of a child Noah would be. He forgot to tell us
that Noah would try, try, and try until he accomplished things like
crawling, feeding himself, and standing up. What he did not
mention is that we would meet supportive and incredible people through
the Down Syndrome Organization. Noah and Ari are now 2.5 years
old and both of them are very healthy boys. They constantly get
one another into trouble just like true brothers. I'm in
trouble!
I'm very honored and
fortunate to be a part of this organization and to work with some great
people. If you every need to get a hold of me, you can email me
at
dfrydman@dsosn.org
.
Hopefully I will have the opportunity to meet all of your
families shortly at the next event.
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2011-2012 Board of
Directors
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DSOSN Board of
Director elections were held at the General Membership Meeting in
April. We Congratulate the following elected officers and general
directors:
Down Syndrome Organization
Of
Southern Nevada
2011 - 2012
BOARD OF DIRECTORS
David
Frydman
Chairman
Parent
Principal of Helen
Jydstrup
Elementary School
Sandy Windom
Vice Chairman
Longtime Supporter
Taiya
Thompson
Secretary
Parent
VP & Senior Account
Executive of Fidelity Investments
Bob
Treants
Treasurer
Parent
Self-employed
Jeffrey Fine
General Director
Parent
Owner of Coffee, Tea & Bean &
Jamba
Juice
Franchises for State of Nevada
Fine Venture Partners
Lori Hutchison
General Director
Parent
Nevada State Bank
Professional Banker
Janis Kelley,
Ph.D.
General Director
Clark County School District
Special Needs Coordinator
Fred Schultz
General Director
CEO
Positively Kids
Evelyn
Yusico-Housewright
General Director
Parent
Contracts Manager
Aerotek
Professional Services
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Board Chair
Column, David
Frydman
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I wanted to take
the opportunity to introduce myself and give you an overview of what the
new Board of Directors have been working on for the past couple of
months.
The new Board of Directors of DSOSN were voted
on in Spring 2011. Our main goal has been to support the mission and
vision of the organization by helping to provide families with Down
Syndrome, therapies, support, and education. During this economic
recession, we need to find creative ways to raise funds so that we can
achieve our goals. It is also extremely important for us to have an
active membership and consistent attendance to our events, fundraisers,
and socials. We are looking for families to provide feedback and to
serve on committees.
Here are some things to look forward to during the 2011-2012 year:
-
Monthly guest speakers
and education/information
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Quarterly new parent
meetings
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Monthly D.A.D.S. (Dad's
Appreciating Down Syndrome) Meetings
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Ongoing therapies and
support
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Speech
Therapy
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Occupational
Therapy
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Hippotherapy
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Music
Therapy
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Adult
Support Meeting
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Organizational Committee
Meetings
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Strategic
Planning (Programming)
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Finance
Committee
-
Membership
Committee
-
Bylaws
Committee
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Membership socials and
fundraisers
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Monthly Newsletters
If you have any
interest in serving on a committee, donating financially, or volunteering
for any of our events, please call
Deann Cline
or Lindsay
Terrett in the office at
702-648-1990. I look will be attending the
National Down Syndrome Conference in San Antonio, Texas with my family
later this week and I look forward to sharing my experiences with you on
the next newsletter.
Warmly,
David
Frydman
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Family Member Profile of the Month
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Each month DSOSN would like to introduce
one of our
member's
and their families in
our newsletter.
This Month we selected
Tateonna
,
and
her Mother Jennifer Haas.
Tateonna
Haas is such an amazing, outgoing,
loving young lady. She raises our spirits with hugs and loves to make
people laugh. She is learning to cook and loves to help out around the
house. She's currently taking dance classes, Music Class and loves
Gymnastics as well.
Her favorite
color is pink with purple being a close second. Favorite movie is Cars 2
and her favorite music is Hannah Montana and Justin
Beiber
.
Favorite sport is definitely Gymnastics, which she competed in the
special Olympics in! She is 12 years old, going into 7th grade at
Scholfield
Middle School where she has the most
amazing teachers and friends.
She's always
looking to make new friends also! If you'd like to email her you can at
Tateonna.H@yahoo.com
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D.A.D.S.
Gathering (Dads Appreciating Down Syndrome)
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Every Fourth Thursday of the Month, 6:30 p.m.
Jackson's Bar and Grill
6020 W. Flamingo Road (NE Corner
of Flamingo /Jones)
Dads Appreciating
Down
Syndrome,
or D.A.D.S. is an organization
of fathers of children who happen to have Down syndrome.
We hesitate to call our self a "support group," even though we
do, in many ways, support each other. We prefer to think of
D.A.D.S. as an "action group." You won't find us in
a church basement drinking warm coffee and whining about having children
with Down syndrome. Instead, you'll find us out in the community
coaching our kid's sports teams, participating in our children's IEPs,
volunteering at local Down syndrome fundraising events, and even
sponsoring fundraising events of our own.
We host regular
meetings where our members come together to share insights and
experiences. Face it: there are certain responsibilities
that generally fall on the shoulders of the father. Having a
child with special needs often affects how we approach
those responsibilities. We can invite expert speakers to
discuss medical, educational, financial, social, and many other issues
that affect our children's lives. And of course, we share stories
and experiences that are unique to fathers of children with Down
syndrome. Your colleagues at the office may not understand your
excitement when your 5-year old makes "
poopie
"
on the toilet for the first time, but other D.A.D.S. will, because we've
all been there.
If you'd like more information, please contact David
Frydman
at
frydmanus@yahoo.com
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DIMES FOR DOWN
SYNDROME
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The 2011-
2012 Dimes for Down Syndrome Campaign will begin
in
September right after the start of the new
school year. This campaign is offered to schools and businesses
that want an easy and fun way to raise funds for the programs and
services of DSOSN.
Dimes for Down Syndrome is
a community service project for school
age children where students bring in their loose change for a two week
period of time designated by schools who register. The top
fundraising class in each school receives a special party. Since
the campaign was implemented in 2006 it has generated over $40,000 to
help those affected by Down syndrome.
Businesses can
also participate in the Dimes for Down Syndrome campaign by offering
either danglers in their place of business for a donation or by placing a
coin collection container in their establishment.
If you are a
school or business interested in participating in Dimes for Down
Syndrome, please contact
Deann
Cline at
648-1990 or
dcline@dsosn.org
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2011 Buddy Walk
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11th Annual Buddy
Walk
The 11th Annual
Buddy Walk will be held on Saturday - October 1, 2011 from 12
noon to 5 pm at Kellogg-
Zaher
Park in Las
Vegas.
The Buddy Walk is
a one-mile friendly walk promoting acceptance, inclusion and awareness of
individuals with Down syndrome and a fundraiser to raise funds for local
programs and services to help those with Down syndrome in our
community. The event includes fun, food, games, entertainment,
raffles and advocacy.
A Special Thank
You to
Aristrocrat
Technologies for returning
for the second year as an Event Sponsor and new Patron Sponsor
Aerotek
.
You can also
IMMEDIATELY sign up for your Free
Firstgiving
online fundraising page. It's a great way to start fundraising now
by setting up your page and emailing it to all your family and friends
anywhere in the world to begin receiving donations in your name
and/or for the name of your team. Just go to
www.firstgiving.com/dsosn/buddywalk
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2011
Firstgiving Buddy
Walk Sign Up Instructions - New login instructions
Below are all the
forms you need to register as a team, a walker, a sponsor or to donate a
raffle item.
2011 BW Fact
Sheet
2011 BW
At A Glance
2011 BW Walker or
Team Captain Registration Form
2011 BW Team
Captain
Committment Form
2011 BW Team
Captain Kit
2011 BW Walker
Kit
2011 BW
Sponsorship Opportunities
2011 BW
Sponsorship Response Form
2011 BW Raffle
and Other Interest Form
2011 BW Dangler
Sample
And look very soon
for details to actually register for the Buddy Walk on the DSOSN
website at
www.dsosn.org .
Once we receive
your Team Captain and/or Walker
Registration Form in any of the above mentioned formats, we will send you
everything you need to get started. Or you can download yourself
from the links above. We also have Buddy Walk posters, danglers and
collection envelopes to collect local donations. If you own a
business or know of a business that is willing to offer donation
danglers, please let us know and we will give you as many as need - plus
the posters. Or if you know of a business that does not want to do the
danglers but would be willing to put a Buddy Walk Collection Bucket in
their establishment, we can supply those also.
Thank you for
joining us and supporting us for the 11th annual Buddy
Walk to benefit DSOSN. Don't hesitate to contact us
for anything you need to grow your team. We look forward
to seeing you at the Buddy Walk on October 1st!
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Royalty & Pearls Tea Party
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Inaugural
Royalty and Pearls
Tea Party
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Ladies, Come Join Us
for a Royally Majestic Tea Party
at
The Presidio at The District
Saturday - October 15, 2011
11 am to 2 pm
2235 Village Walk Drive
Henderson, NV 89052
Details:
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Fashion
Show presented by Patty's Closet
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Ticket includes Tea
Luncheon, a Ladies Goody Bag and 2 Raffle Tickets
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Ticket Price: $50
for Adults, $40 for ages 12 to 18
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Additional Raffle
Tickets available for purchase
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There will be a
Hat/Fascinator Contest - so come royally dressed in your best
headpiece and pearls!
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Optional: Bring
your
your
own special tea cup and saucer
and have your name entered into a drawing for a special door prize
Teas generously sponsored by
Coffee Bean & Tea Leaf
Email
Deann
Cline at
dcline@dsosn.org to
reserve your seat(s) or call
702-648-1990 .
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Southern Highlands 5k
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2011 Southern Highlands
Fall Festival
5K & 1 Mile Fun Walk
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Goett
Family Park
Southern
Highlands
Saturday - October 22, 2011
9:00 am to
1:00 pm
Registration
begins at 7:00 am
Pre-registration Run &
Walk
Adult - $30 per person
Children under 14 - $15 per
child
Race Day Registration Run
& Walk
Adult - $40 per person
Children under 14 - $20 per
child
In
additon
to other funds we receive from this event, DSOSN will receive $2.00
for
every participate
we register.
Please let DSOSN know as well as Southern Highlands that you are a
DSOSN registrant.
To register online go to www.sh5k.com.
DSOSN is truly honored
to once again be a charitable recipient of this fun filled event
that includes a 5K Race, 1 Mile Fun Walk, Games, Bounces, Booths, a
Pumpkin Patch, Food and much more! Come out and support this great
event as Southern Highlands supports us. Other charitable recipients
include the Southern Highlands Boys & Girls Club and We R
Community.
HELP SPONSOR
THIS SOUTHERN HIGHLANDS EVENT AND HELP DSOSN AS WELL!
The more revenue this event
generates, the greater DSOSN and other charities benefit. Southern
Highlands is looking for two $25,000 Title Sponsors. If DSOSN can
secure a Title Sponsor, we are guaranteed 100% of those proceeds.
We also will receive 50% from any sponsors we secure that range from
$2,500 - $15,000. This is all above and beyond what Southern
Highlands will divide up amongst all the charities. If you or
your company would like to sponsor this event at any level on behalf of
DSOSN, please let us know as well as Southern Highlands so we receive
the credit. Below are links describing the sponsorship
opportunities in detail as well as the sponsorship agreement
form.
Any questions, please either
call Southern Highlands Executive Director Shelley
Caiazzo
at
702-263-1000 or
Deann
Cline at the DSOSN office.
Southern
Highlands Sponsorship Opportunities
Southern
Highlands Sponsorship Agreement Form
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2011 Festival of
Trees & Lights
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23rd Annual
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"Tidings of
Joy -
A Season of Hope
and Celebration"
to benefit the
Down Syndrome
Organization
of
Southern
Nevada
Friday - November
18, 2011
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