If you have arrived here, there is a good chance you have received news you did not expect. As an expectant or new parent you have been told your child has Down syndrome
If your child has arrived, please accept the sincere congratulations of our entire community!
Whether you are celebrating the birth of your child or anticipating its arrival, here you will find the basic information you need — to manage your pregnancy, plan for the delivery and to get started on the rewarding processes of having a child with Down syndrome in your life.
The most important thing to keep in mind is that this diagnosis is not as life changing as the fact that you have a new baby. And in most ways, your baby will be just like other infants. Every baby needs to be fed, held and most of all, loved.
There will be challenges in raising your child, but there will also be many, many joys. It’s normal to be nervous about what lies ahead, but remember that Down syndrome is a condition your baby has, it is not who your baby is. Now is the time to begin learning all you can about Down syndrome and this website is a great place to start.
Want to start now?
If you would like to speak with a parent from DSOSN’s New Member Committee, please call our office at 702.648.1990. You will be connected with a parent in your area who can offer support, information and friendship to you as you begin your life with your new baby.
If you are a father of a child with Down syndrome and you want to meet other fathers with the same concerns and needs as you, contact Joey Calarco at firstname.lastname@example.org to join the local D.A.D.S. Chapter (Dads Appreciating Down Syndrome).
If you are a mother of a child with Down syndrome and you want to meet other mothers to share concerns and needs, contact Julie Wood at (402) 210-1284 or at Jwttv@hotmail.com. You can also connect with the M.O.M.S. group on Facebook at MOMS Southern NV.
If you would like to speak to an information specialist at the National Down Syndrome Society (Monday-Friday from 9am to 5pm EST) call 1-800-221-4602.
CLICK HERE to watch the National Down Syndrome Society’s new parent video, A Promising Future Together: A Guide for New Parents of Children with Down Syndrome. This video features families discussing different stages in their children’s lives, as well as developmental pediatricians and other professionals giving information about medical, social and educational issues for families of children with Down syndrome. The video covers early intervention, local and national resources and health care screenings that can help their children achieve their full potential.
CLICK HERE to download a PDF version of A Promising Future Together: A Guide for New Parents of Children with Down Syndrome, by the National Down Syndrome Society, or call 1-800-221-4602 to order a complimentary copy in English or Spanish.
CLICK HERE to visit Brighter Tomorrows, a web-based resource on receiving a diagnosis of Down syndrome prenatally or at birth. Brighter Tomorrows provides answers to questions that families and prospective parents may have at this critical moment in their lives. In both English and Spanish.
NEW PARENT PACKAGE:
Down Syndrome: A New Parents’ Guide (PDF)
Facts about Down Syndrome
Baby is a Baby First
Your Baby and Down Syndrome (PDF)
New Parent / Early Intervention Resources (PDF)
Advice For New Parents
Healthcare Guidelines (PDF)
EXPECTANT PARENT INFORMATION: